Living with Dementia

We examine what it means to live with dementia, what kind of social and institutional barriers and risks of care poverty are faced by persons with dementia and their family carers, and how their participation and agency should best be supported on the level of daily life, social participation and care services.

Table of contents

Project duration
-
Core fields of research
Physical activity, health and wellbeing
Research areas
Active ageing and care
Department
Department of Social Sciences and Philosophy
Faculty
Faculty of Humanities and Social Sciences
Funding
Kone Foundation
Research Council of Finland

Project description

In this project, a consortium of researchers from the Ä¢¹½Ö±²¥, the Finnish Institute for Health and Welfare and Tampere University outline socially sustainable care for persons living with dementia, either in ordinary homes or in care facilities, and their informal carers. 

We examine what it means to live with dementia, what kind of social and institutional barriers and risks of care poverty are faced by persons with dementia and their family carers, and how their participation and agency should best be supported on the level of daily life, social participation and care services.  

 We develop a social relational model of dementia that takes into account not only the individual perspectives but also the social and relational aspects. Finally, the empirical research involving people with dementia and their family carers and developing the theoretical model enable gaining profound understanding on how to organize and promote socially sustainable care and services for persons living with dementia in national care policies and local care provision.  

Project team

External members

Jenni Kulmala

gerontologian apulaisprofessori, osahankkeen johtaja

Mari Aaltonen

johtava tutkija, osahankkeen johtaja

Jari Pirhonen

yliopistotutkija

Johanna Edgren

erikoistutkija

Anne-Marie Mäkelä

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